Autism #5

 

Know Your Rights: Laws and Autism

 

If you or your child has autism, some of the most basic things you can study and learn are your rights. Every American citizen is protected under the constitution, and there are special laws that have been passed to help protect people with autism and other disabilities. By knowing the laws that protect you or your autistic loved ones, you can live in a world that provides better opportunities to everyone, regardless of not only disability, but also race, gender, and ethnicity. This is simply the first step to creating a more tolerant world in general.

The first law with which you should become acquainted is I.D.E.A. or the Individuals with Disabilities Education Act. The I.D.E.A. covers children ages 3 to 21 and provides autistic children with the special educational programs they need. The I.D.E.A. gives parents the right to be involved with education decisions concerning their child made by the school. Your child first needs to be assessed to qualify under the I.D.E.A., and this is best done by a private professional. In the end, your child has the right by law to receive a free public education that is appropriate for his or her skill level. If your public school has no such program, they are required to find one or create one at no cost to you.

Also, become familiar with and knowledgeable about the American Disabilities Act. Under this act, discrimination due to disability is prohibited in the workforce, as well as with state and local government, public accommodations, the United States Congress, public transportation, and telecommunications. For example, if you are autistic, but have the skills to do a certain job, you cannot be refused the job because of your autism.

Other laws provide rights for people with autism so that they are constitutionally equal to others. One such law says that people with autism have the right to vote, and accommodations must be made so that this is possible. Another says that autistic individuals cannot be refused housing based on disability. Others provide equal rights in all other aspects of life, and these should especially be studied if your loved one with autism is in a health care institution. By knowing the law and how it applies to yourself or others with autism, you can be sure that justice is upheld. If you have questions, local law officials should be ready and willing to answer you or provide you with material to answer your own questions. Remember that ignorance of the law is not a valid excuse for anyone, so be an advocate for yourself or others with autism to prevent mistreatment.

My Child is Autistic—and I don’t know what to Do…

 

Discovering your child has autism may be a distressing ordeal, and unfortunately, time is of the essence. As a parent, you do not have the time to consider why or how this happened, only what to do next. The most important thing to remember is that you are not alone in your struggle. By researching the disorder and finding others going through similar situations, you can help your child while still dealing with your own emotional response.

Join a support group for parents with autism. You can find these by contacting the national Autism Society of America. From there you can find local branches, many of which offer support groups for parents and families with an autistic children. Being in contact with other parents in a similar situation can not only help you feel less alone but can provide you with a myriad of resources. A parent support group will also help point you in the direction of the best doctors, intervention programs, and workshops for both your child and your family. Find a support group for any other children you have as well. Many parents forget that they are not the only ones who must learn to live and communicate with an autistic child. By locating a support group for your other children, you can help them from acting out or acting against the autistic child by teaching them about the illness. As a parent, you must create a supportive environment for the entire family to properly manage your child’s illness.

Consider marriage counselling if you are married. An autistic child can put a serious strain on a marriage, leading to escalating arguments, neglect of each other, and even perhaps blaming each other for the situation. Marriage counselling from the very beginning can help a couple through this discovery and rough transition, and help build a better supportive environment for their children. Your marriage should not end as a result of having an autistic child, but the sad fact is that many of them do. Prevent this by using one another for support and by understanding that you may need help to deal with one another now and in the future.

Most importantly, start on the path to becoming an expert. Many times paediatricians or psychiatrists are not experts on autism, which can lead to improper diagnoses or incorrect treatment options. As your child’s best advocate, you must know everything you can about autism. Parents of Autistic Children can be a great resource; this organization offers training and workshops. The ASA has a newsletter and also offers a variety of information, from diagnosing to treating. As always, remember that a support group of parents with autistic children can always provide you with books and research that focus on the reality of the situation. Educate yourself and those around you to provide the most beneficial things for your child—love and guidance.

 

Robotic Hugs: How a Hug Can Help Your Autistic Child

Autistic children and adults often seek pressure in a variety of ways to calm themselves and cope with sensory overload. Oftentimes, hugs and squeezes from other people can cause more distress because autistic children or adults are often unable to communicate their needs by indicating a particular amount or length of pressure. This is both frustrating and ineffective for both the autistic person and whoever is hugging or squeezing them. 

The hug machine was created to help relieve this frustration, putting autistic individuals in control of their situation. Both children and adults who suffer from autism sometimes crave pressure to help calm anxiety. Because of this, one woman with autism developed the hug machine, also known as a hug box or a squeeze machine. The hug machine has two padded sideboards connected near the bottom of the boards to form a V-shape. A lever helps push the sideboards together to create pressure; the lever also allows the autistic child or adult the ability to control the amount and length of pressure.

Studies are still being conducted to find out why those with autism respond to pressure and how it can produce a calming effect. The hug machine may affect the heightened sensory perceptions of those with autism who often feels disruptive or distressing behaviour. By applying pressure, perhaps the autistic child or adult moves his or her focus to a single feeling—the pressure—which in turn produces a calming effect. For many autistic children and adults, anxiety can be completely incapacitating. Not being able to function with the anxiety is frustrating, and so appropriate social behaviour is even more difficult. Sometimes, the only release from such anxiety is through pressure. To this day, the hug machine is used by several programs and researchers studying autism as well as therapy programs. 

Remember that hugging or squeezing an autistic child may not help him or her. You may, in fact, increase their senses and cause more anxiety. Though you may not be able to purchase a hug machine, you may be able to create a similar object. Try wrapping the autistic child or adult in a blanket, where they can control how much pressure to apply. You can also look into buying padded boards that more closely simulate the hug machine’s side-boards and perhaps tie or tape some heavy-duty yarn to each side to allow the autistic child or adult control over how much pressure to apply and for how long. Contact your child’s school to see if there has been any interest in purchasing a community hug machine. This may not be a cure to all your child’s problems, but it works well to help many autistic individuals cope with the world.

Self-Injury: How to Stop this Dangerous Practice

Many wonders why anyone would practice self-injury, as it is painful and dangerous. However, with autistic children, self-injury occurs more often than not. There are several theories as to why this practice can be prevalent in autistic children, and there are some methods you can use to help ease this distressing practice.

Because autistic children are unable to communicate through language the way that others can, they often feel frustrated at not being understood or at not getting what they need or want. Thus, autistic children may commit self-injury, by banging their heads or biting themselves (among other tactics), to release some of that frustration that cannot be communicated through words. Also, self-injury is a way of getting attention. An autistic child’s frustration goes hand-in-hand with wanting attention. For instance, by scratching oneself until one bleeds, the autistic child will immediately get someone’s attention, and this person will work to understand what the child wants or needs.

This theory of frustration and attention has been the sole thinking for quite some time. Recently, however, studies have shown that self-injury can have a biochemical component that relieves some of the pain and frustration one feels by releasing endorphins, or “happy hormones,” into one’s system. The endorphins also provide a release for the autistic child, allowing him or her to temporarily forget about his or her frustration and pain. Furthermore, it is believed that if one practices self-injury enough, the endorphins will begin to help mask any pain associated with such behaviour, making it an addictive action. 

While some professionals say that ignoring the autistic child’s self-injurious behaviour is an acceptable method of treating such a practice, this can obviously be very difficult. Others have suggested that communication therapy and drugs may help an autistic child by providing him or her with another method of communication. Some drugs will help stem the addictive behaviour of releasing endorphins into the system and thus help stop such behaviour. There are also nutritional solutions available; vitamin B6 and calcium have been said to help many families with an autistic child.

For the family members involved, communication training to learn how to communicate with an autistic child is also extremely important. Because normal adults, and even children and teenagers, are so accustomed to communicating through easily recognizable words or body language, they have to learn that communicating with an autistic child requires a completely different process. By looking for solutions for both the family and the autistic child involved in self-injurious behaviour, one may be able to overcome this distressing practice.